Sharing the story: Julianna’s exceptional story goes viral (via CNN)… and the impact of that.

Julianna’s story goes viral via CNN… and the impact of that. In this Zoom interview with CPN, Michelle — mother of Alex (age 7) and Julianna, who had a severe form of Charcot-Marie-Tooth disease and died at age 5 — explains how she began sharing the exceptional conversation she had with Julianna about her wishes and how the writing turned into a story on CNN that went viral, and the range of feedback, judgement and comments she got, good and bad. Michelle reflects on the experience and how she doesn't regret the decision. "Families have contacted me and it’s changed the way the course of their child’s care which is incredible to me. Now I'm grateful we shared." https://youtu.be/QvnUcMPsg6g