Research register provides rapid access to rare renal disease patients

Research registries offer enormous opportunities for clinical research and present a very efficient way of conducting studies. RaDaR (National Registry of Rare Kidney Diseases) is one such registry which currently holds data from almost 24,000 patients with rare kidney disease. Dr Danny Gale is Associate Professor of Nephrology at University College London and Chair of the Rare Disease Committee for the Renal Association. He is the project lead for RaDaR and explains how it works and the benefits this approach presents for researchers and patients. Find out more about how the NIHR supports the delivery of Complex and Innovative Design (CID) clinical trials and studies: https://www.nihr.ac.uk/partners-and-industry/industry/run-your-study-in-the-nhs/complex-innovative-trials.htm Subscribe to the NIHRtv YouTube channel at https://www.youtube.com/NIHRtv Follow NIHR on social media • Twitter https://twitter.com/NIHR_Industry • LinkedIn https://www.linkedin.com/showcase/nihr-industry